I haven’t posted for a while as my head hasn’t been in the best place for the last few months or so because I’ve been dealing with so much bullshit. But a few things have changed since the last time I posted, so things are moving forward slowly.
My biggest piece of news is that I finally won my PIP case and its all sorted, which is a massive relief. On the flipside of that I have to reapply for ESA next April/May and my PIP in September. I’m trying not to worry about it too much but its hard not to as I’ve been through 14 months of hell with PIP. I am just trying to concentrate on the now and getting through this coming “Joyful” season.
So that’s my main news, its a bit bittersweet but hey such is life. My other good news is that I finally have an appointment at Southampton General Hospital to see a Vasculitis specialist in January and it couldn’t come sooner, I’ve been waiting for a long long time for this to be sorted out. I know exactly what I want and need out of this appointment, so I am almost bursting to get there and start getting the ball rolling.
I’ve also had an appointment through for the endocrinologist and that’s in March. They’ve already started me on Vitamin D tablets as my levels are really low and they need them to be at a certain level before I can start hormones. So super excited for this appointment but I know that until I come off my steroids I cannot start hormones, which is why the Southampton appointment is so important.
I think that’s all the big stuff that’s been going on over the last few months. My head has been all over the place recently, so its hard to remember things. My mood has been up and down as well but I am starting to feel a bit more settled now.
This is just the tip of the iceberg really, there’s tons of other stuff that I haven’t even mentioned but I will try and post again soon.