I haven’t posted for a while in detail about my health issues and transition, so as I am sitting at the laptop downloading pictures and stuff I thought I would write about what’s been going on in a bit more detail.
In January I finally had my first appointment with my new Rheumatologist in Southampton hospital and it went really well and he was super nice. I saw him again on 2nd March, which was also my birthday lol. He started me on a new med called Mycophenolate 500mgs twice a day. It’s going ok so far, it’s caused a bit of insomnia but I am hoping that will sort itself out. I got back in 4 months time, which is good. I also got to have monthly bloods again now I am back on an immunosuppressant drug, which I’m used too having been on Methotrexate.
This week I saw my new ENT doc at Southampton and he gave me Neil med Sinus rinse, Flixonase nose drops and a 8 week course of Doxycycline to try and get on top of this sinus infection, before we talk about any surgical intervention. Which I understand, he’s got protocols to follow. I really hope this all works out and we don’t have to go down the surgical route. I got a follow up in June.
Mental health stuff is going ok-ish, just still struggling with dissociation, depersonalisation and derealisation. But I am finding that taking pics and posting on social media is helping me stay in the moment. Also I am finding things to do to keep me busy to help keep me in the moment, like playing on the PS4, Lego, playing with the dogs, arts and crafts etc I am really trying my best so I don’t have to go back to the CMHT.
On Thursday I saw the Endocrinologist at the gender identity clinic in London and he said my health issues and medication will not interfere with my medical transition, especially starting Testosterone. Which is absolutely amazing news, so so happy about that. The only thing he did say is that I’m overweight..yup already knew that lol! but he did also say that my last blood results said that my cholesterol was a bit high, so before starting T I’ve got to get my weight down otherwise I will be more at risk of a heart attack. Which is fine, I know I need to lose weight, I’m not happy with my weight as is it right now. My next appointment isn’t until June but I’ve been put on the cancellation list, fingers crossed it will be sooner. My next appointment will be hopefully where I get the yes to start T, so its all super exciting.
So yeah everything is pretty much going ok, I’m happy with my new med regime and I really hope it improves my health.
Category: antibiotics, bipolar, chronic fatigue, chronic illness, chronic pain, disassociation, dogs, fatigue, gender dysphoria, gender identity, granulomatosis with polyangiitis, hobbies, insomnia, methotrexate, my life, self care, transgenderTags: arts and crafts, blood test, depersonalisation, derealisation, dissociation, dogs, doxycycline, Endicronologist, ent, Flixonase, gender dysphoria, gender identity clinic, happy, lego, London, mental health, mycophenolate, Neil med Sinus Rinse, photography, physical health, PS4, rheumatology, social media, Southampton hospital, testosterone, transboy, transgender, transition