Category: granulomatosis with polyangiitis

Living with a Chronic illness – Hospital appointments

There are some things that came part and parcel with having a chronic illness and one of those things is having lots of hospital and doctors appointments. I have a good GP whom which I get on well with, along with the nurses who…

Living with a Chronic Illness – Ordering Meds

Every single time I order my Prednisolone they give me the wrong dosage ones! Despite having been on the exact same ones for most of my life! It’s infuriating because they’ve wasted money as those wrong meds will not be given to another person….

Counselling – Asking for help isn't shameful

I went back to counselling sessions about 3/4 months ago now and I’ve found it to be really beneficial and has really helped me to process things I’ve been dealing with and has helped me unpick some real deep routed/ingrained stuff that I hadn’t…

Disassociation and other stuff

I’m not sure this post will make much sense, or even have a point lol. But I just need to write things out and hopefully help sort through the mass of thoughts that race through my brain every second of every day. I’m going…

Dear friends,

Dear friends, old and new. To those who I’ve known for 20 years and to those who I’ve known for 2 months. I wanted to write this to catch everyone up on where I am and where I’ve been. In January, I was in…

Living with a chronic illness – Hospital appointments

I’ve not written about my physical health for a while, but in the last week I’ve had 3 hospital appointments which was crazy! They’re like buses all come at the same time! The first hospital appointment was Wednesday 16th Jan was my first physiotherapy…

Vasculitis sucks! – living with a chronic illness

Yesterday was so long and exhausting, not only did I have to go to Christchurch hospital but I also had to go to the chemist in Bournemouth hospital… but that’s a whole other story. Yesterday I saw a vasculitis nurse because I’ve been having…