Category: granulomatosis with polyangiitis

Where do I belong – communities

Where do I belong? Is something I’ve been thinking about for a while and whilst I belong to a few different communities, I don’t really engage with them as much as I would like too, if I did maybe I wouldn’t feel so lonely.… Continue Reading “Where do I belong – communities”

Living with cHRONIC iLLNESS

Last week I had had to wear a blood pressure monitor for 24 hours, which went well. It didn’t bother me at all during the night. Monday my GP rang me to discuss the results and they weren’t great. He said my blood pressure… Continue Reading “Living with cHRONIC iLLNESS”

Living with a Chronic illness

Having a chronic illness is hard work, especially at the moment, with the current pandemic. As I’ve mentioned in previous posts I am classed a vulnerable and I’m meant to be staying inside for 12 weeks, but I’ve had to go out for various… Continue Reading “Living with a Chronic illness”

Self care + Chronic illness

I have a really cool book that’s called Health Minder Personal wellness Journal, its really detailed and its great for keeping track of your physical and mental health. I’ve not used it in 2 years and I thought since I have a lot of… Continue Reading “Self care + Chronic illness”

Chronic illness – Covid19

I’ve been back and forth about writing this as the entire world is talking about it and rightly so as its serious. There’s lots of information out there, misinformation, real information and so on. There’s also a lot of people panicking. So it’s hard… Continue Reading “Chronic illness – Covid19”

Living with a Chronic illness – Hospital appointments

There are some things that came part and parcel with having a chronic illness and one of those things is having lots of hospital and doctors appointments. I have a good GP whom which I get on well with, along with the nurses who… Continue Reading “Living with a Chronic illness – Hospital appointments”

Living with a Chronic Illness – Ordering Meds

Every single time I order my Prednisolone they give me the wrong dosage ones! Despite having been on the exact same ones for most of my life! It’s infuriating because they’ve wasted money as those wrong meds will not be given to another person.… Continue Reading “Living with a Chronic Illness – Ordering Meds”

Counselling – Asking for help isn’t shameful

I went back to counselling sessions about 3/4 months ago now and I’ve found it to be really beneficial and has really helped me to process things I’ve been dealing with and has helped me unpick some real deep routed/ingrained stuff that I hadn’t… Continue Reading “Counselling – Asking for help isn’t shameful”

Disassociation and other stuff

I’m not sure this post will make much sense, or even have a point lol. But I just need to write things out and hopefully help sort through the mass of thoughts that race through my brain every second of every day. I’m going… Continue Reading “Disassociation and other stuff”

Dear friends,

Dear friends, old and new. To those who I’ve known for 20 years and to those who I’ve known for 2 months. I wanted to write this to catch everyone up on where I am and where I’ve been. In January, I was in… Continue Reading “Dear friends,”