Tag: granulomatosis with polyangiitis

Living with cHRONIC iLLNESS

Last week I had had to wear a blood pressure monitor for 24 hours, which went well. It didn’t bother me at all during the night. Monday my GP rang me to discuss the results and they weren’t great. He said my blood pressure…

Living with a Chronic illness

Having a chronic illness is hard work, especially at the moment, with the current pandemic. As I’ve mentioned in previous posts I am classed a vulnerable and I’m meant to be staying inside for 12 weeks, but I’ve had to go out for various…

Self Care

I’ve not written much about self care recently, as after surgery self care was kinda a given. I had to listen to my body and look after myself. Recently I haven’t been feeling great, I’ve been feeling absolutely exhausted and generally just been feeling…

Dear friends,

Dear friends, old and new. To those who I’ve known for 20 years and to those who I’ve known for 2 months. I wanted to write this to catch everyone up on where I am and where I’ve been. In January, I was in…

Dealing with disassociation – with self care

Schedule for tomorrow, this helps so much with disassociation and trying to get some stuff done. It’s mostly dependent on weather, pain and energy levels. I’m hoping I don’t feel as wiped out tomorrow so Scrappy and I can get out for a good…

Living with a chronic illness – Hospital appointments

I’ve not written about my physical health for a while, but in the last week I’ve had 3 hospital appointments which was crazy! They’re like buses all come at the same time! The first hospital appointment was Wednesday 16th Jan was my first physiotherapy…

Trying to keep it together

I decided to write today, mainly so I can get all this crap out my head and stop it from just going around in circles. I finally managed to get onto my doctors notes… I can’t use any of it though! Its so inaccurate…